Progress

What a difference 12 hours makes.  This morning Jadelyn was still experiencing anesthesia induced nausea, some pain and dealing with all the frustrating tubes and wires.  This evening she was head bobbing, with lips pursed, and body dancing (laying down and barely moving, but body dancing none the less) while the boys sang her "The Little Drummer Boy" over the phone.  I know it's not Christmas anymore but she still loves that song and asks for it frequently. If she wasn't so still she would be her completely normal self, peppy, chatty and full of questions.  She ate chicken tenders, grapes and yogurt for supper.

Progress steps today:  pulled chest tube and Folley catheter.  Removed arterial line. Using the potty in her room.  Up and taking walks down the hall.  Watching basketball with dad before bed=)  Her favorites of the day were still being held and I'm pretty sure it was Danae and my favorite part too!  

Dr.'s are happy with her progress.  Still have a couple steps to get through, an echo (heart ultrasound) sometime in the next couple days will probably be the biggest.  All the nurses have been absolutely wonderful.  Very attentive, patient, gentle and capable.  We have appreciated each one and it's almost hard to tell them goodbye not knowing if we'll see the same one again or not.  

Tomorrow we expect lots more walking and activity. Hopefully we will start talking about discharge plans but don't want to be too anxious and leave before we are ready.  I (Aaron) was able to get into the Ronald McDonald House today so our housing is more stable and we are able to comfortably get through the nights.  

Thank you to all who are praying and sending texts and messages.  We love hearing from you and wish the hospital would allow more visitors, but we understand the importance of keeping these kids healthy as well.  As our situation stabilizes, I become more and more aware of how many families are in similar or even more difficult situations.  We don't know their stories but we feel their pain and worry and our hearts and prayers reach out to them as well.  

Goodnight from Philly, we will update through the day tomorrow if there is opportunity or tomorrow night at least.